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NCPC’s Difficult Conversations booklets look at a range of conditions, and aim to help anyone, paid or unpaid, caring for someone with those conditions to open up conversations about end of life wishes and preferences, in order to enhance quality of life.Includes all five titles in the series: Difficult Conversation for COPD (Chronic Obstructive Pulmonary Disorder)Difficult Conversations for DementiaDifficult Conversations for MND (Motor Neurone Disease)Difficult Conversations for Heart FailureDifficult Conversations for Young Adults
Whilst many people live well with Chronic Obstructive Pulmonary Disorder (COPD) for many years, it is the cause of death for approximately 25,000 people a year. It can therefore be extremely difficult to know how and when to start conversations about end of life issues, for fear of taking away a sense of hope. We asked around sixty people affected by COPD (patients, carers and former carers) how, when and with whom they would like to have conversations about end of life care. The guidance is based entirely on these discussions. It presents a unique perspective, containing practical hints on what to say and more importantly, what not to say. This guidance was produced with support from the British Lung Foundation and the Department of Health.
This guidance aims to help anyone, paid or unpaid, caring for someone with dementia to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with around fifty people affected by dementia; people with dementia, carers and former carers.
Making it easier to talk about the end of life with people affected by heart failure.This guidance, funded and supported by the British Heart Foundation, aims to help anyone caring for someone with Heart Failure to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with more than sixty people affected by Heart Failure: people with Heart Failure, carers and former carers.Thanks to the British Heart Foundation this publication is free of charge.
Making it easier to talk about the end of life with people affected by Motor Neurone Disease.This guidance aims to help anyone, paid or unpaid, caring for someone with Motor Neurone Disease (MND) to open up conversations about end of life wishes and preferences, in order to enhance quality of life. It is based on conversations with around sixty people affected by MND: people with MND, carers and former carers.
This guide was developed in response to a gap in health professionals’ skills in having difficult conversations with the growing number of young adults with life-limiting conditions who come in to their care. This gap was one of the findings of the STEPP research project (a project which looked at examples of positive practice in transition to adult health settings for young adults with life-limiting conditions). It aims to support professionals to improve quality of life and provide peace of mind for young people and their families, by sharing insights from young people themselves and their families about discussing the end of life. The guide describes feelings they experience when having conversations on this sensitive subject and gives ideas about how to approach it. It also aims to be a useful prompt that young people can use to broach the subject of end of life planning with family, friends and professionals.
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The Dying Matters Coalition is led by the National Council for Palliative Care, the umbrella charity for end of life care in England, Wales and Northern Ireland.